Background and activities
Berge Solberg is a professor in medical ethics and head of the teaching in medical ethics in the medical school at the Norwegian University of Science and Technology (NTNU). He is the deputy leader of the National Committee for Medical and Health Research Ethics (NEM), and he is a member of the Clinical ethics committee at St. Olavs Hospital. Between 2004 and 2013 he was a member of The Norwegian Advisory Board on Biotechnology, and thereby worked intesively with policy issues regarding prenatal diagnosis, assisted reproduction and genetic testing in Norway. Solberg wrote his PhD on the ethics of prenatal diagnosis. Recent years, much of his focus has been on the research ethical questions regarding biobanks and the development of large scale biobank infrastructures as well as the use of next generation sequencing technology. He has also been a member of the advisory committe of Norwegian Health Inspectorate on costly cancer drugs. He was until 2013 one of the editors of the Nordic journal of applied ethics.
Fields of interest:
Medical ethics and research ethics in general. Special interest in the ethics of prenatal diagnosis, assisted reproduction, newborn medicine, medical genetics and biobanking .
- Ethics and exome sequencing in a family with colorectal cancer (2013-2017)
- Parents decisions with regard to extremely premature newborns(2012-2016)
- The ethics of genetic sequencing (2011-2013)
- "In genes we trust - biobanks and everyday life" (2009-2012)
Steinsbekk KS, Myskja B, Solberg B. Broad consent versus dynamic consent in biobank research: Is passive participation an ethical problem? European Journal of Human Genetics (advance online publication 9 January 2013; doi: 10.1038/ejhg.2012.282).
Solberg B, Steinsbekk KS. Managing incidental findings in population based biobank research . Norsk Epidemiologi 2012 ;Volum 21.(2) s. 195-201.
Steinsbekk KS, Solberg B. Should genetic findings from genome research be reported back to the participants? Tidsskr Nor Legeforen 2012; 132:2190-3
Steinsbekk KS, Ursin LØ, Skolbekken JA, Solberg B. We're not in it for the money-lay people's moral intuitions on commercial use of 'their' biobank. Medicine, Health care and Philosophy 2012.
Steinsbekk KS, Solberg B. Biobanks - when is re-consent necessary? Public Health Ethics 2011 ;Volum 4.(3) s. 236-250
Solberg B. Getting beyond the welfare of the child in assisted reproduction. Journal of Medical Ethics 2009 ;Volum 35.(6) s. 373-376
Solberg, B. Prenatal screening for Down Syndrome. Why we shouldn't?. I: Arguing about Disability Philosophical Perspectives. Routledge 2009 ISBN 978-0-415-45595-4. s. 185-202
Steinsbekk, KS, Solberg B, Myskja BK.From idealism to realism: Commercial ventures in publicly funded biobanks. I: New Challenges for Biobanks: Ethics, Law and Governance. Intersentia 2009
Ursin LØ, Solberg B. When is normative recruitment to medical research legitimate? Nordic journal of applied ethics 2008 ;Volum 2.(2) s. 93-113
Skolbekken JA, Ursin LØ, Solberg B, Ytterhus B, Christensen E. Not worth the paper it's written on? Informed consent and biobank research in a Norwegian context. Critical Public Health 2005 ;Volum 15.(4) s. 335-347
Complete list of publications, presentations and media contributions:
- Kristin Solum Steinsbekk - Biobank research ethics -an examination of consent,commercial use and return of research results in the realm of population based biobank research (2013)
- Erik Christensen - Individ og fellesskap i bioetikken (2013)
- Lars Ursin - The informed consenters. Biobank Research and the ethics of recruitment and participation (2008)
- Patrick Kermit - The ethics of cochlear implantation of deaf children (2010)
- Bente Kojan - Klasseblikk på et barnevern i vekst (2011)