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​Conference banner. Left side: A logo commemorating 200 years since the first description of CLN3 disease by Stengel. Right side: Conference details — "Stengel 200 CLN3 Conference", 23–27 August 2026, Røros, Norway.

About the Conference

Save the date.

Registration will open Spring 2026.

 

Welcome to Stengel 200, a special conference celebrating the 200th anniversary of the first description of CLN3 disease. We are thrilled to invite you to join us in the picturesque town of Røros, Norway, the historic site where CLN3 disease, also known as Juvenile Neuronal Ceroid Lipofuscinosis (JNCL) or Juvenile Batten disease, was first reported in 1826 by the mining doctor Otto Christian Stengel. The conference promises to be an extraordinary event, being a small and very focused meeting that will to bring together the brightest minds and most dedicated professionals in the field of CLN3 disease research and clinical care.

About the Conference

The Stengel 200 CLN3 Conference offers a unique platform for world-leading researchers, healthcare providers, industry partners, innovators, and patient advocacy leaders to converge, share knowledge, and collaborate on pioneering advancements. Our goal is to foster an environment of learning, innovation, and partnership to drive forward the understanding and treatment of CLN3 disease.

Why Attend?

  • Cutting-Edge Research: Discover the latest breakthroughs in CLN3 research from renowned experts and early stage investigators.
  • Networking Opportunities: Connect with fellow professionals, industry leaders, and advocates.
  • Innovative Solutions: Explore new technologies and treatments that are shaping the future of CLN3 patients.
  • Patient Advocacy: Engage with patient advocacy leaders to understand the impact of CLN3 disease on families and communities.
  • A historical perspective: to build upon Stengel’s original observations, how they inform current and future work and place them in their proper context.

Location

Røros, a UNESCO World Heritage site, offers a unique blend of history and natural beauty, providing an inspiring backdrop for our congress. This charming town is not only known for its rich cultural heritage and stunning landscapes but also for its historical significance to the field of NCL research. Røros is where Dr. Stengel first described a local family with four children affected by what we now know as CLN3 disease. Attendees will have the opportunity to explore this fascinating town and its remarkable history, including visits to Stengel’s gravesite and the Røros Copper Mine.

Join Us

We look forward to welcoming you to Stengel 200 CLN3 Conference, where together we can make a difference in the lives of those affected by CLN3 disease. Your participation is crucial in advancing our collective mission to improve outcomes and find a cure.