Access to HUNT data and samples for research purposes
Access to the requested HUNT data is given after the application is processed and a contract is signed. The contract gives the researcher(s) the right to research a specific topic for a limited time period and to publish a decided upon number of articles.
What is available?
The Nord-Trøndelag Health Study stores questionnaire data and biologial specimens from the general population of Nord-Trøndelag, Norway, in the age range 13 years and over, gathered in the following time periods 1984-1986 (only 18+) 1995-1997 2006-2008.
Who can apply for data?
Any research group with a Principal Investigator affiliated with a Norwegian research institute can apply for access to analyse HUNT data. This means that research groups from non-Norwegian countries must find a collaboration partner in Norway to be able to use HUNT material. Projects must have recommendations from The Regional Committee for Medical Research in Norway (REK) and be registered with The Norwegian Social Science Data Services (NSD). The project leader affiliated with The Medical Faculty at NTNU is covered under HUNT's licence from The Data Inspectorate, but must obtain a recommendation from the Regional Committee for Medical and Health Research Ethics (REK).
Many students have used HUNT data in their work, and are welcome to continue doing so as long as they follow the same application process as listed in the next paragraph.
- The principal investigator should be familiar with the HUNT data base and choose the relevant variables. All variables can be found in HUNTs overview in the web databank. See the questionnaires and variable list (for the time being a Norwegian site).
- The application form can be filled in from HUNT databank. Choose “register new user” if it is the first time you send an electronic application.
- The application form will ask you for the following obligatory information, without which it will not be possible to complete the form:
- Project title
- Project protocol
- Affiliation of the applicant
- Project description in Norwegian
- Provisionary titles of planned publications
- projected start and end date for the project
- invoice information
- information on all project participants. Each project must at least register a signing official and a principal investigator
- which data is applied for (wave of data gathering, Young-HUNT or main HUNT)
- if applicable: which other registries will be used in combination with HUNT data (note: each registry has their own application procedure)
- if applicable: what kind of samples, how many, and in which concentration you wish to use.
- Other information may be sent later, but the Data Access Committee at HUNT Research Centre cannot give a final approval of your application until the following documents also are received:
- REK (Regional Ethical Committee) approval
- variable order in Excel sheet(s) – for instructions on how to do this, see the page on variable ordering.
- To send additional documents / information, please use email@example.com.
- All applications will be assessed by HUNTs Data Access Committee. Applications are normally processed within three weeks. Applications that include use of biological material may take longer than three weeks.
- Data is delivered when all the necessary documents have been sent to HUNT Research Centre, the project has been approved of, and a project agreement is signed and returned to HUNT Research Centre.
- The usual costs for use of HUNT data is NOK 28,670 per planned scientific publication. Different rates apply for bachelor / master student papers.
See the guidelines for administration and use of data from The Nord-Trøndelag Health Study for detailed information.
Relevant links and documents
New pricing as of January 1st, 2016
All Norwegian universities are to use pricing in accordance with the so-called TDI modell. HUNT Research Centre also follows these guidlines and has adjusted their cost levels accordingly. Prices as of January 1st, 2017:
- Cost per planned scientific publication will be NOK 28,957, which will amount to NOK 86,872 for a typical PhD project with 3 publications. VAT must be added to projects by non-NTNU researchers.
- Pricing in consortium studies, when HUNT-data is pooled together with at least 2 other cohort studies (registries excluded) – costs will be NOK 10,000 per planned publication + VAT.
- Studentpapers (bachelor, master, “hovedoppgave”): NOK 2,000 per paper- if a paper is planned published in a scientific journal, the usual costs for publications is applied.
- Hourly rate for the construction of tables - minimum NOK 3.000 for a 3-hour job. Additional hours will be billed at NOK 800,-- per hour.
- Use av SNP’s with known associations comes with an additional cost of NOK 10.000 per planned publication. For hte use of less then 10 SNPs a discount of NOK 5.000 applies.
More information on the use of SNP data can be found at KG Jebsen senteret for genetisk epidemiologi.
Note: Prices for biological samples and analyses can be found here: https://www.ntnu.edu/hunt/hunt-biobank