Background and activities
Berge Solberg is a professor in medical ethics and head of the teaching in medical ethics in the medical school at the Norwegian University of Science and Technology (NTNU). He is the deputy leader of the National Committee for Medical and Health Research Ethics (NEM), and he is the secretary of the Clinical ethics committee at St. Olavs Hospital. Between 2004 and 2013 he was a member of The Norwegian Advisory Board on Biotechnology, and thereby worked intesively with policy issues regarding prenatal diagnosis, assisted reproduction and genetic testing in Norway. Solberg wrote his PhD on the ethics of prenatal diagnosis. Recent years, much of his focus has been on the research ethical questions regarding biobanks and the development of large scale biobank infrastructures as well as the use of next generation sequencing technology. He has also been a member of the advisory committe of Norwegian Health Inspectorate on costly cancer drugs. He was until 2013 one of the editors of the Nordic journal of applied ethics.
Fields of interest:
Medical ethics and research ethics in general. Special interest in the ethics of prenatal diagnosis, assisted reproduction, newborn medicine, medical genetics, biobanking and organ donation .
Solberg B, Ursin L (2019). Being polite: Why Biobank Consent Comprehension is Neither a Requirement nor an Aspiration. The American Journal of Bioethics, vol 19, issue 5.
Nydal R, Solberg B & Myskja B (2019). Interessekonflikter i forskning: Om forskningens saksorienterte forpliktelse ("Conflicts of interest in research: On the obligation of researchers to be oriented towards the subject matter itself"). Kapittel i: Ingjerd H, Bay-Larsen I og Hiis Hauge K (2019). Interessekonflikter i forskning. Cappelen Damm Akademisk.
Solberg B (2018). To inform or not to inform. Tidsskr Nor Legeforen. doi: 10.4045/tidsskr.18.0265
Solberg B (2018). From Prenatal Diagnosis to Preterm Infants: A Cultural Guide to Understand Scandinavian Variation. Pediatrics, September, vol 142/ Issue Supplement 1
Magelssen M, Solberg B, Supphellen M & Haugen G (2018). Attitudes to prenatal screening among Norwegian citizens: liberality, ambivalence and sensitivity. BMC Medical ethics, 19:80.
Eikemo H & Solberg B (2018). Rulemaking in the US. An investigation of the process leading up to the new US Common Rule with a focus on biobank research. BBMRI-ERIC.
Solberg B (2016). The Incompatible Codes of Prenatal and Neonatal Practice. In Newsletter Section on Bioethics, American Academy of Pediatrics, spring 2016.
Solberg B, Steinsbekk KS (2015). Biobank consent models – are we moving toward increased participant engagement in biobanking? Journal of Biorepository Science for Applied Medicine 2015, 3:23-33.
Steinsbekk KS, Myskja B, Solberg B (2013). Broad consent versus dynamic consent in biobank research: Is passive participation an ethical problem? European Journal of Human Genetics, 2013 Sep; 21(9): 897–902.
Solberg B, Steinsbekk KS (2012). Managing incidental findings in population based biobank research . Norsk Epidemiologi, Volum 21(2) s. 195-201.
Steinsbekk KS, Solberg B (2012). Should genetic findings from genome research be reported back to the participants? Tidsskr Nor Legeforen 2012; 132:2190-3
Steinsbekk KS, Ursin LØ, Skolbekken JA, Solberg B (2012). We're not in it for the money-lay people's moral intuitions on commercial use of 'their' biobank. Medicine, Health care and Philosophy 2012.
Steinsbekk KS, Solberg B (2011). Biobanks - when is re-consent necessary? Public Health Ethics 2011 ;Volum 4.(3) s. 236-250
Solberg B (2009). Getting beyond the welfare of the child in assisted reproduction. Journal of Medical Ethics 2009 ;Volum 35.(6) s. 373-376
Solberg, B (2009). Prenatal screening for Down Syndrome. Why we shouldn't?. I: Arguing about Disability Philosophical Perspectives. Routledge 2009 ISBN 978-0-415-45595-4. s. 185-202
Steinsbekk, KS, Solberg B, Myskja BK (2009).From idealism to realism: Commercial ventures in publicly funded biobanks. I: New Challenges for Biobanks: Ethics, Law and Governance. Intersentia 2009
Ursin LØ, Solberg B (2008). When is normative recruitment to medical research legitimate? Nordic journal of applied ethics Volum 2.(2) s. 93-113
Skolbekken JA, Ursin LØ, Solberg B, Ytterhus B, Christensen E (2005). Not worth the paper it's written on? Informed consent and biobank research in a Norwegian context. Critical Public Health, Volum 15.(4) s. 335-347
Complete list of publications, presentations and media contributions:
PhD: Sorting of human life? The ethics of making children with or without knowledge on genetic risk (NTNU 2003, in Norwegian)
- Kristin Solum Steinsbekk - Biobank research ethics -an examination of consent,commercial use and return of research results in the realm of population based biobank research (2013)
- Erik Christensen - Individ og fellesskap i bioetikken (2013)
- Lars Ursin - The informed consenters. Biobank Research and the ethics of recruitment and participation (2008)
- Patrick Kermit - The ethics of cochlear implantation of deaf children (2010)
- Bente Kojan - Klasseblikk på et barnevern i vekst (2011)
Scientific, academic and artistic work
A selection of recent journal publications, artistic productions, books, including book and report excerpts. See all publications in the database
- (2019) Being Polite: Why Biobank Consent Comprehension is Neither a Requirement nor an Aspiration. American Journal of Bioethics.
- (2018) Attitudes to prenatal screening among Norwegian citizens: liberality, ambivalence and sensitivity. BMC Medical Ethics. vol. 19 (80).
- (2018) From prenatal diagnosis to preterm infants: A cultural guide to understand scandinavian variation. Pediatrics. vol. 142.
- (2017) Verdien (av) inkludering i ergoterapien. Ergoterapeuten. vol. 6.
- (2015) Biobank consent models – are we moving toward increased participant engagement in biobanking?. Journal of Biorepository Science for Applied Medicine. vol. 3 (1).
- (2013) Broad consent versus dynamic consent in biobank research: Is passive participation an ethical problem?. European Journal of Human Genetics. vol. 21 (9).
- (2013) We're not in it for the money - lay people's moral intuitions on commercial use of 'their' biobank. Medicine, Health care and Philosophy. vol. 16 (2).
- (2012) Managing incidental findings in population based biobank research :. Norsk Epidemiologi. vol. 21 (2).
- (2012) Skal genfunn ved genomforskning meldes tilbake til deltakerne?. Tidsskrift for Den norske legeforening. vol. 132.
- (2011) Biobanks - when is re-consent necessary?. Public Health Ethics. vol. 4 (3).
- (2009) Genetic counseling in congenital long QT syndrome. Tidsskrift for Den norske legeforening. vol. 129 (12).
- (2009) Genetisk veiledning ved medfødt lang QT-syndrom. Tidsskrift for Den norske legeforening. vol. 129.
- (2009) Getting beyond the welfare of the child in assisted reproduction. Journal of Medical Ethics. vol. 35 (6).
- (2008) Frykten for et samfunn uten Downs syndrom. Etikk i praksis. vol. 2 (1).
- (2008) When is normative recruitment legitimate?. Etikk i praksis. vol. 2 (2).
- (2005) Not worth the paper it's written on? Informed consent and biobank research in a Norwegian context. Critical Public Health. vol. 15 (4).
- (2003) Den nye Bioteknologiloven � ikke til barnas beste likevel?. Nytt Norsk Tidsskrift. vol. 20 (3).
- (2003) Den nye bioteknologiloven og det gamle alderskriteriet. Tidsskrift for Den norske legeforening. vol. 123 (19).
- (2003) Gen-etikken � historien om etikken som ikke lot seg anvende?. Norsk Filosofisk tidsskrift. vol. 38 (1-2).
- (2002) Bioetikere vs lekfolk - hvem er eksperter på rett og galt i bioteknologien?. Parabel : Tidsskrift for filosofi og vitenskapsteori. vol. 5 (2).