Background and activities
Lars Øystein Ursin is Associate Professor and Researcher of Bioethics at the Norwegian University of Science and Technology.
Current research projects and committee appointments include research ethics, neonatal clinical ethics, biobank and health data ethics, philosophy of death, ethics of biotechnology, animal ethics, and RRI in higher education, basic research and food production.
Current research projects and groups
ETHNA System - Ethics Governance System for RRI in Higher Education, Funding, and Research Centres (EU Horizon 2020)
Health, data and the welfare state – debating the data-driven futures in the Nordic Countries
Reinforcing the Health Data Infrastructure in Mobility and Assurance through Data Democratization
Bio-engineered palladium nanoparticles (BEDPAN)
PREMETIKK Parental decision-making with regard to extremely premature newborns
National training initiative to make better use of biobanks and health registry data
Biobank Norway ELSI Common service
HUNT-GENES K.G. Jebsen-center for genetic epidemiology, NTNU
HARVEST Better health by harvesting biobanks
RESET Research Group on the Ethos of Technology
MHEtikk Research Group on Medical Ethics
Some current appointments
Head of the Norwegian Unit of the UNESCO Chair in Bioethics
The Nord-Trøndelag Health Study (The HUNT Study), Chairman of HUNT4 Ethics committee
Head of MH Examen philosophicum working group
Member of the Regional committee for medical and health research ethics
NTNU Biotechnology, Member of Responsible Research and Innovation Steering group
Scientific, academic and artistic work
A selection of recent journal publications, artistic productions, books, including book and report excerpts. See all publications in the database
- (2019) European Electronic Personal Health Records initiatives and vulnerable migrants: A need for greater ethical, legal and social safeguards. Developing World Bioethics.
- (2019) Data in question: A survey of European biobank professionals on ethical, legal and societal challenges of biobank research. PLOS ONE.
- (2019) Are Requirements to Deposit Data in Research Repositories Compatible With the European Union's General Data Protection Regulation?. Annals of Internal Medicine. vol. 170 (5).
- (2019) Being Polite: Why Biobank Consent Comprehension is Neither a Requirement nor an Aspiration. American Journal of Bioethics.
- (2019) Withholding and withdrawing life-sustaining treatment: Ethically equivalent?. American Journal of Bioethics. vol. 19 (3).
- (2019) Withholding Versus Withdrawing Treatment: Why Medical Guidelines Should Omit “Theoretical Equivalence”. American Journal of Bioethics. vol. 19 (6).
- (2018) Justified by what? Three ways to provide an ethical basis for neonatal policies. Pediatrics. vol. 142.
- (2018) Ethics of dead participants: policy recommendations for biobank research. Journal of Medical Ethics. vol. 44 (10).
- (2018) In the best interest of the. . .parents: Norwegian health personnel on the proper role of parents in neonatal decision-making. Pediatrics. vol. 142.
- (2016) The Ethics of the Meat Paradox. Environmental Ethics. vol. 38 (2).
- (2016) Think Global, Buy National: CSR, Cooperatives and Consumer Concerns in the Norwegian Food Value Chain. Journal of Agricultural and Environmental Ethics. vol. 29 (3).
- (2013) We're not in it for the money - lay people's moral intuitions on commercial use of 'their' biobank. Medicine, Health care and Philosophy. vol. 16 (2).
- (2012) Peeking into the black box of privacy : biobank participants on the importance of recognition. Norsk Epidemiologi. vol. 21 (2).
- (2010) Biobank research and the welfare state project: the HUNT story. Critical Public Health. vol. 20 (4).
- (2010) Das persönliche Genom: Abschied von Privatheit und Zustimmung in der Biobankforschung?. Berliner Debatte INITIAL: Zeitschrift für sozialwissenschaflichen Diskurs. vol. 21 (4).
- (2010) Privacy and Property in the Biobank Context. HEC Forum. vol. 22 (3).
- (2009) Personal autonomy and informed consent. Medicine, Health care and Philosophy. vol. 12 (1).
- (2008) Biobank research and the right to privacy. Theoretical Medicine and Bioethics. vol. 29 (4).
- (2008) When is normative recruitment legitimate?. Etikk i praksis. vol. 2 (2).
- (2005) Not worth the paper it's written on? Informed consent and biobank research in a Norwegian context. Critical Public Health. vol. 15 (4).